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Showing posts with the label we are our only hope

Grieving Lost Possibilities, Finding My Feet, and Moving On

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This is a long one. Interrupt your attention deficit and read the whole thing. Thanks. In December 2003, my wife, Monica and I welcomed a baby girl, Sarah Grace. The months leading up to her birth were filled with excitement and anticipation. Both Monica and I were at an age where we thought we’d never be parents, so we were both surprised by the possibility, and we couldn’t wait for our baby to arrive. The day she was born we were greeted with a reality we weren’t prepared for. Sarah was born with a chromosomal disorder called Trisomy 18, an extra chromosome on the 18th strand of DNA in every cell of her body that would make it more likely than not that she would die. Despite the challenges, she fought for every moment of life that she had. The days in the hospital are kind of a distant blur now, but there were hours in the NICU spent with my hand through a hole in the incubator giving her as much human contact as the machine would allow. Signing a Do Not Resuscitate order